So what does life look like . . .

With  couple young kiddo's, one with a serious heart defect.

You know, except for the medication 3X per day and blood draw 1 X per month, pretty normal.

Josie has a bit less stamina than she otherwise might, but when JJ was only 3 we took strollers everywhere in case of nap crashes.  Josie does not nap, but we still take strollers everywhere in case a ride is required  Oh, and we keep Josie below 5000 feet.

That's about it - basically you would never suspect anything was going on with her unless we told you.

Of course, if we are very lucky people, we will get to share the experience of open heart surgery, but until then.