Wednesday update. First set of tests and paperwork done. She is in the clinical trial.
Three sets of blood tests and a six minute walk tomorrow. She will be admitted for the switch around 11 am. After that five days in the hospital.
Pray for my patience. She is one high energy inquisitive kid!
Our bags are packed and we are ready to go. Josie and I are headed to Stanford for a week and a half to see if oral medication is a good option for her.
Three sets of blood tests and a six minute walk tomorrow. She will be admitted for the switch around 11 am. After that five days in the hospital.
Pray for my patience. She is one high energy inquisitive kid!
Updated. We made it. First appointment bright and early
Our bags are packed and we are ready to go. Josie and I are headed to Stanford for a week and a half to see if oral medication is a good option for her.
If all goes well she will leave with a central line but no IV pump. If all is still well a month later we can have the central line removed.
Yea. That would be a big deal.
I will update as we go along. Prayers and good wishes appreciated.
With love
Kim
Ps. I am taking only my iPad this time. I will need typo mercies!
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