I have been politely reminded (a couple times) that it has been a while since I sent an update.
That is mostly because there is not a whole lot of drama happening, thank goodness!
We have reached a sort of balance. We have entire weeks with no medical side effects showing up and we have weeks where we lose an hour and a half sleep every other night with Josie feeling really bad.
We have some clues, but don't always know why it goes one way or the other.
The med is still not quite doing the job, so we will need to increase Josie's dose again (slowly). I'm not sure how this medicine will end up, but right now Josie is really enjoying being IV line free, so as sleep deprived as we are at times we are enjoying it with her.
Josie told me a couple weeks ago that the time she had the line was when she was really sick. She is not better at all, but she thinks she is . . . so that makes it worth it.
Thanks to all those who follow along and keep us in prayer and in thought.
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